24 Aug
I haven’t blogged for ages. I’m not sure why. I got out of sync I think. I forgot how to blog, I couldn’t be bothered. I also had a lot of other things taking up brain space.
I also found myself wanting to be private for a bit while I get used to my new hearing levels.
I’m not back to normal, but I am doing ok. Just OK.
The CI isn’t improving either – they even flew a guy from the USA out to try a few things with me, but as much as I felt awful saying, it didn’t make much difference.
In terms of my right ear, the one that went kaput, well, it slowly got better over a period of time. The tinnitus quietened down, the hearing got better. It’s not back to how it was, but I’m not complaining. What I have now is even more precious than I ever had before – and I’m scared it’ll go again. Those 2-3 months when I had nothing at all, scored extremely highly in the hardest weeks of my life.
But what I’m interested in gaining back now is not the rest of the hearing I had – it’s my confidence. In terms with dealing with the public, I’m still finding it very hard. The lack of clarity means I’m relying on lipreading so much more, and it’s exhausting. So many people have very hard lip patterns to follow.
My children are wonderful, my biggest one has been teaching my little one signs unprompted. It’s such a special thing to see. Sign language is a huge part of my life – it always was, but it’s even more prominent now.
I’ll try and write again sooner rather than later. I’ve missed blogging, it was always a good way to get things out of my system. So hopefully, The Deaf One is back x
3 Responses for "An update for you all"
It’s great to see you blogging again! I’m sorry to hear the CI hasn’t worked for you, is there still hope for it or has it got to the point where they’ve basically tried everything?
I’m pleased to hear you have your previous levels of hearing back in your other ear though! I did worry about that when you first blogged about it. It’s strange that I should feel like that when I don’t even know you but it’s true. As I’ve mentioned before, my mother has to rely on hearing aids so some of what you talk about is familiar to me, though her hearing loss isn’t anywhere near as bad as yours.
I have often thought about learning sign language in case her hearing loss gets any worse. Currently she uses lip reading techniques a lot, but that is far from perfect. Of course, it would be no good just learning it on my own! I’d have to convince her it’s a good idea too.
Glad to see you back, and I look forward to future posts from you. 🙂
Take each day as it comes. You will know if you still read my blog, that I have lost further hearing too, and have new hearing aids to try and make up for some of this loss. I’m scared of losing more too. But I try not to think too far ahead, and just concentrate on a day at a time.
Changes are happening at work too. Again I have mentioned this on my blog. So I hope all this helps for me.
You take care, and I hope you are all settled in your new home.
Hi,
Have just been reading your back story. I don’t know what to say really – I am not surprised you are so tired sometimes. I am exhausted when I go to a deaf nursery with my little girl and it only lasts two hours! I guess that is it – I am thrown into a world of sign language which is a real struggle as I am at the beginning of learning. But that sense of communication being a struggle -you must experience far more often. My thoughts are with you and I hope to see you writing here more. It is a real catharsis for me at the moment…
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